评估患有性腺炎的患者未得到满足的需求
Simran A Chadha1, Molly A Stout2, Parul Kathuria Goyal2
1Department of Dermatology, Northwestern University Feinberg School of Medicine, 676 N St. Clair St, Suite 1600, Chicago, IL, 60607, USA. simran.chadha@northwestern.edu.
Archives of dermatological research
|June 1, 2023
概括
患有辅助性脑膜炎 (HS) 的患者经历了显著的护理缺口,突出了医疗和支持性护理的未满足需求. 了解患者的观点对于改善HS管理和结果至关重要.
科学领域:
- 皮肤病学 皮肤病学
- 患者报告的结果
- 医疗保健服务研究 医疗服务研究
背景情况:
- 补腺炎 (HS) 的诊断和管理在医疗保健提供者之间显示出显著的差异.
- 这种变化可能会导致诊断延迟和不理想的患者结果.
- 了解患者的经验对于改善HS护理至关重要.
研究的目的:
- 从受影响患者的角度来看,描述腹炎 (HS) 护理的缺口.
- 确定HS患者在医疗和支持性护理方面的未满足需求.
主要方法:
- 被诊断为HS的成年患者从皮肤病学实践中招募.
- 数据收集涉及参与者调查和半结构化焦点小组.
- 传统的内容分析被用来从转录的焦点组数据中识别主题.
主要成果:
- 从患者体验中出现了六个关键主题,详细介绍了HS护理的未满足需求.
- 四个主题专注于改善医疗管理:获得护理,疾病修饰疗法,症状治疗和不良事件预防.
- 两个主题突出了加强支持性护理的需要:心理健康支持和专业的日常穿戴产品.
结论:
- 这项研究确定了6个未得到满足的需要,为患者与 hidradenitis suppurativa (HS).
- 患者的观点强调了改善医疗和支持性护理策略的必要性.
- 结果表明虚拟格式的研究和临床参与的潜力,并强调在HS管理中跨学科的合作.
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