"没有沟通":对聋手语人士的提前护理计划经验进行了定性检查
Caroline Cerilli1, Gabrielle Katz2, Angelo E Volandes3,4
1Johns Hopkins Disability Health Research Center, Johns Hopkins University, Baltimore, MD, USA.
Journal of palliative care
|June 2, 2023
概括
美国聋人手语 (ASL) 用户在终身护理方面面临重大障碍,原因是资源有限和沟通挑战. 可访问的ASL工具对于改善这一群体的预先护理计划至关重要.
科学领域:
- 在健康方面存在差异.
- 医疗保健中的语言可访问性
- 患者为中心的护理
背景情况:
- 美国聋人手语 (ASL) 用户因沟通和语言障碍而经历医疗保健差异.
- 在ASL中,缺乏预先的护理规划和终身护理资源.
研究的目的:
- 探索聋人ASL用户对终身护理的看法和经验.
- 调查与为聋ASL用户预先计划护理相关的障碍和促进者.
主要方法:
- 与聋人ASL用户进行了半结构面试.
- 采访由一位双语研究人员翻译和转录成英语.
- 感应编码确定了主题;通过简短的评估来评估知识.
主要成果:
- 参与者报告了障碍,包括供应商沟通不良和无法访问的资源,导致不信任.
- 可访问的沟通和社交网络促进了对事先护理计划的理解.
- 平均预先护理规划知识较低 (4.6/15),信息主要来自个人经验和同行.
结论:
- 聋的ASL用户对终身护理资源的访问有限,这阻碍了事先的护理计划.
- 迫切需要ASL可访问的教育工具,以便在医疗机构预先规划护理.
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