在设计痴呆症特定措施时,应用以人为中心的研究伦理
Sheila L Molony1, Sam Fazio2, Ricci Sanchez3
1Quinnipiac University School of Nursing, 275 Mt. Carmel Ave, Hamden, CT 06518, United States of America.
Journal of aging studies
|June 2, 2023
概括
对于阿尔茨海默病和相关痴呆症的研究和护理,需要新的基于优势的措施. 以人为中心的设计提供了一种创新的方法来开发敏感的结果措施,涉及痴呆症患者和护理合作伙伴.
科学领域:
- 老年学是一门学科.
- 神经科学是一个神经科学.
- 医疗保健服务研究 医疗服务研究
背景情况:
- 在阿尔茨海默病 (AD) 和相关痴呆症 (DRD) 中,越来越需要基于优势的结果测量.
- 现有措施在捕捉以人为中心的干预措施的影响方面的局限性.
- 以人为中心的设计 (HCD) 的潜力,用于开发敏感,相关的仪器.
研究的目的:
- 描述一个利用HCD的研究过程,用于开发基于AD/DRD的基于优势的措施.
- 突出在痴呆症的背景下应用HCD的伦理考虑.
- 强调在设计过程中包括痴呆症患者和护理合作伙伴的价值.
主要方法:
- 在仪器开发中应用以人为中心的设计原则.
- 协作设计团队,包括患有痴呆症的个人和他们的护理伙伴.
- 专注于道德原则:包容性,透明度和以人为中心.
主要成果:
- 用HCD来开发基于强项的新型措施的可行性.
- 确定了从痴呆症患者和护理伙伴的直接参与中获得的关键见解.
- 强调在整个HCD过程中对痴呆症研究的伦理考虑的重要性.
结论:
- HCD是一种有前途的方法,用于创建敏感的,基于优势的AD/DRD的结果指标.
- 将痴呆症患者和护理伙伴作为设计团队成员的参与丰富了开发过程.
- 遵守伦理原则对于在痴呆症护理研究中以人为中心的尊重和有效的仪器开发至关重要.
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