扩大民族学工具包:使用医疗文件,在定性研究中包括患有痴呆症的无亲戚老年人
Lily N Shapiro1, Marlaine Figueroa Gray1, Callie Freitag2
1Kaiser Permanente Washington Health Research Institute, USA.
Journal of aging studies
|June 2, 2023
概括
这项研究引入了一种新的方法来研究认知障碍的老年人,特别是那些没有亲密家庭的人. 分析现有数据和医疗记录可以提高痴呆症研究的包容性.
科学领域:
- 老年学是一门学科.
- 医学社会学 医学社会学
- 定性研究方法 定性研究方法
背景情况:
- 老年人认知障碍在民族学研究中对知情同意提出了挑战.
- 代理人同意往往排除了痴呆症患者缺乏亲属关系的个人.
- 患有痴呆症的弱势群体需要包容性研究方法.
研究的目的:
- 描述研究认知障碍的老年人没有亲属关系的方法.
- 探索这种方法的伦理含义和民族学有效性.
- 为难以接触的群体提出一个包容性研究战略.
主要方法:
- 对现有的纵向研究数据的分析 (成人思想变化研究).
- 从痴呆症和没有近亲的参与者的医疗记录中检查非结构化文本.
- 探索该方法的功能,局限性和伦理考虑.
主要成果:
- 该方法允许研究痴呆症孤立个体的生命轨迹,护理资源和护理需求.
- 对现有数据和医疗记录的分析提供了对情况和护理要求的洞察力.
- 这种方法提供了一种方法,包括那些可能被排除在研究之外的参与者.
结论:
- 使用现有数据和医疗记录进行协作跨学科研究是民族学工具包的宝贵补充.
- 这种方法可以广泛应用,并与传统方法相结合,以增加研究包容性.
- 拟议的方法解决了伦理挑战,并扩大了认知障碍弱势群体的研究可能性.
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