重新审视与健康相关的概念的含义和来源以及它们在神经障碍中的应用
1Department of Pediatrics, CanChild Centre for Childhood Disability Research, Institute for Applied Health Sciences, McMaster University, Hamilton, Ontario, Canada.
Developmental medicine and child neurology
|June 3, 2023
概括
本综述阐明了主观健康结果,定义了生活质量 (QoL) 和与健康相关的QoL (HRQoL),以改善患者报告的结果研究,特别是在神经障碍方面.
科学领域:
- 健康研究成果研究结果
- 患者报告的结果.
- 神经障碍研究的神经障碍研究.
背景情况:
- 健康和主观评估的概念化正在发展.
- 诸如生活质量 (QoL),与健康相关的QoL (HRQoL) 和幸福感等术语经常互换使用,导致混乱.
- 准确测量患者的结果对于临床决策和政策制定至关重要.
研究的目的:
- 澄清主观患者结果的常见概念和框架的含义.
- 检查测量的内容和患者报告结果的首选信息来源.
- 为应对在神经障碍患者群体中使用患者报告结果的具体挑战.
主要方法:
- 综述用于捕捉主观患者结果的常见概念和框架.
- 讨论导致 QoL 和 HRQoL 混的因素.
- 说明清楚的研究问题,假设和操作定义如何增强方法论.
主要成果:
- 阐明所感知的健康和生活问题的语言,内容和来源.
- 确定不一致的术语如何阻碍结果研究.
- 突出了患者报告的神经障碍结果的具体挑战和考虑.
结论:
- 清晰的概念化和操作定义对于强大和有效的健康结果研究至关重要.
- 区分QOL和HRQoL对于准确的评估至关重要.
- 提高术语和方法的清晰度将推动患者报告的结果研究,特别是神经障碍.
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