患有亨廷顿病的养老院居民:特征和功能上的异质性
Marina R Ekkel1, Ruth B Veenhuizen1, Anouk M van Loon2
1Amsterdam UMC, location Vrije Universiteit Amsterdam, Department of Medicine for Older People, Amsterdam, the Netherlands; Amsterdam Public Health, Aging & Later Life, Amsterdam, the Netherlands; Huntington Expert Centre Atlant, Apeldoorn, the Netherlands.
Brain and cognition
|June 3, 2023
概括
患有亨廷顿病 (HD) 的养老院居民表现出多样化的功能,日常活动和沟通显著受损. 在养老院的HD妇女比男性更容易患上依赖和抑郁症.
科学领域:
- 神经学 神经学
- 老年病的医生 老年病的医生
- 精神病学是一个精神病学.
背景情况:
- 亨廷顿病 (HD) 需要在晚期进入养老院 (NH).
- 了解患有HD的NH居民的护理需求需要深入了解他们的功能.
研究的目的:
- 描述NHs中患有HD的个体的患者和疾病特征.
- 评估这个患者群体的功能.
- 识别特征和功能上的性别差异.
主要方法:
- 横截面描述性研究设计.
- 收集了来自8个荷兰HD专业NHs的173名患者的数据.
- 评估患者的特征,功能和性别差异.
主要成果:
- 患者的平均年龄为58.3岁,男性为49.7%.
- 在日常生活活动 (ADL) 和认知 (22-23%严重受损) 中观察到显著损伤.
- 在24%的人群中,沟通严重受损,在31%的人群中,社交功能低下. 大多数人使用精神药物 (80.3%) 并表现出神经精神病症状 (74%).
- 与男性相比,女性的ADL依赖程度更高 (33.3%与12.8%相比),抑郁率更高 (26.4%与11.6%相比),抗抑郁药处方量更多 (64.4%与48.8%相比).
结论:
- 在NH中患有亨廷顿病的患者代表了一个异质的群体.
- 复杂的护理需求需要专业人员的专业知识,以获得足够的护理和治疗.
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