头癌患者的决策辅助工具:从患者最终用户的设计建议的定性提取
Eleah Stringer1,2, Julian J Lum3,4, Jonathan Livergant1,5,6
1School of Health Information Science, University of Victoria, Victoria, BC, Canada.
JMIR human factors
|June 5, 2023
概括
头癌 (HNC) 的幸存者希望拥有可定制视觉效果的电子决策辅助器 (eDA),以更好地了解治疗选择. 以用户为中心的设计是有效的医疗信息学创新的关键.
科学领域:
- 医疗信息学 医疗信息学
- 卫生沟通健康沟通
- 患者决策支持 患者决策支持
背景情况:
- 头癌 (HNC) 患者经历了显著的症状负担,功能障碍和生活质量下降.
- 在HNC患者中,焦虑和抑郁是常见的,原因是治疗的复杂性和缺乏可理解的信息.
- 以患者为中心的决策支持和视觉辅助工具可以提高对治疗决策的理解和满意度.
研究的目的:
- 收集HNC幸存者的要求,以设计电子决策辅助器 (eDA).
- 确定eDA的关键视觉组件,以帮助治疗决策.
- 增强患者对HNC治疗选择的理解和参与.
主要方法:
- 范围审查为eDA屏幕和可视化创建提供了信息.
- 12名HNC幸存者通过半结构化访谈提供了有关实用性,功能和要求的反.
- 对视频录制的采访进行主题分析,以共同设计的建议为基础.
主要成果:
- 幸存者对决策辅助工具 (DA) 和eDA原型的多功能性表示熟悉和支持.
- 对模型的反显示,他们更喜欢简单的设计,可定制性和特定的展示设备.
- 出现了9个主题,分为"eDA和决策支持"和"模型评估".
结论:
- 与瘤学家一起使用的eDA可以提高治疗解释透明度和教育质量.
- 幸存者强调需要可定制的eDA来满足个人信息要求.
- 在医疗信息学中以用户为中心的设计和视觉集成对于患者参与和知情决策至关重要.
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