对癌症注册数据库和工具的投资是否带来了附加值? 作为一个例子NORDCAN
Hans Henrik Storm1, Siri Larønningen2, Freddie Bray3
1Danish Cancer Society, Management, Copenhagen, Denmark.
Acta oncologica (Stockholm, Sweden)
|June 5, 2023
概括
诺德坎为癌症控制和研究提供了重要的价值,通过增加出版物和成本有效的整合来证明这一点. 可持续的融资模式对于其在北欧癌症统计中的未来实用性至关重要.
科学领域:
- 公共卫生 公共卫生
- 癌症流行病学 癌症流行病学
- 医疗信息学 医疗信息学
背景情况:
- 在Kreftbildet i Norden (KIN) 的合作中,强调了需要及时提供北欧癌症统计数据的需要.
- 基于网络的NORDCAN工具是由北欧癌症注册表协会 (ANCR) 在北欧癌症联盟 (NCU) 的支持下开发的.
- 该研究旨在正式评估NORDCAN经常性投资的附加值,尽管其已建立的全球影响力.
研究的目的:
- 评估NORDCAN的科学和经济价值.
- 为了确定是否继续投资NORDCAN是合理的.
- 为癌症控制资源的未来融资策略提供信息.
主要方法:
- 在PubMed中对引用NORDCAN的出版物进行了文献计量分析.
- 对NORDCAN分配的资金与早期北欧癌症预测和生存研究的资金进行了比较.
- 分析了用户统计和出版趋势,以评估影响.
主要成果:
- 在43个期刊中发现了96个引用NORDCAN的出版物.
- 从2017年 (4篇论文) 到2022年 (24篇论文) 观察到NORDCAN引用的大幅增加.
- 将生存和预测项目整合到NORDCAN中,大大降低了投资成本.
结论:
- 基于用户统计数据和科学成果,NORDCAN 展示了明确的附加值.
- 数据库和交互工具作为研究和教育的关键资源.
- 可持续的融资模式对于NORDCAN在癌症控制和研究中的持续作用至关重要.
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