让患者和其他利益相关者参与"为传播设计"的记录链接方法和工具
Jenna E Reno1,2, Toan C Ong2, Chan Voong2
1RTI International, Center for Communication and Engagement Research, Research Triangle Park, North Carolina, United States.
Applied clinical informatics
|June 5, 2023
概括
这项研究让患者和利益相关者参与,为以患者为中心的结果研究 (PCOR) 创建记录链接 (RL) 的资源. 开发的包包括关于数据隐私的视频和研究人员的工作簿,增强RL采用.
科学领域:
- 临床信息学 临床信息学
- 医疗保健服务研究 医疗服务研究
背景情况:
- 新的记录链接 (RL) 方法整合了各种患者数据以实现以患者为中心的护理.
- 参与患者和利益相关者对于RL在以患者为中心的结果研究 (PCOR) 的接受和实用性至关重要.
- 科罗拉多大学记录链接 (CURL) 平台支持在PCOR中实现RL.
研究的目的:
- 描述参与患者和利益相关者设计RL传播包的过程.
- 支持在PCOR中采用和使用RL方法.
主要方法:
- 利用了客户发现,价值主张设计和用户体验方法.
- 代开发了一个传播包,包括解释视频和研究规划工作簿.
- 在设计过程中参与患者,研究人员,数据管理人员和监管官员.
主要成果:
- 患者合作伙伴强调了患者利益和数据隐私/安全协议的重要性.
- 其他利益相关者强调RL解决方案的准确性,灵活性,效率和数据安全性.
- 传播产品解决了已识别的价值主张,视频重点关注隐私,研究设计和合规工作簿.
结论:
- 开发的传播产品旨在促进CURL平台的采用和使用.
- 材料有助于患者参与RL研究,并为将RL整合到PCOR中的研究人员提供决策支持.
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