照顾依赖的孩子会影响实际和情感上的问题,需要支持,但癌症患者没有感知到痛苦
Dominik Fugmann1, Peter Richter1, André Karger1
1Medical Faculty, Institute of Psychosomatic Medicine and Psychotherapy, University Hospital Düsseldorf, Heinrich-Heine-University Düsseldorf, Düsseldorf, Germany.
Psycho-oncology
|June 5, 2023
概括
癌症患者有依赖的孩子经历更多的痛苦和家庭问题. 尽管对支持的需求更大,但他们并不经常使用心理社会服务,这表明对这些父母的照顾存在差距.
科学领域:
- 在瘤学瘤学.
- 心理社会瘤学
- 癌症护理 癌症护理
背景情况:
- 超过10%的癌症患者是照顾孩子的照顾者.
- 父母癌症对痛苦和心理社会支持需求的影响尚未得到充分了解.
研究的目的:
- 为了比较癌症患者与没有子女的癌症患者之间的痛苦程度和心理社会支持需求.
- 调查心理社会支持利用的差异.
主要方法:
- 德国横截面研究的二次分析.
- 对161名有子女的癌症患者和161名没有子女的癌症患者进行匹配比较.
- 使用自我报告问卷,包括危险温度计 (DT) 和DT问题列表.
主要成果:
- 超过50%的患者经历了临床相关的痛苦.
- 患有依赖子女的患者报告实践,家庭和情感问题显著增加.
- 患有癌症的父母报告说,他们更需要心理支持,但没有增加利用率.
结论:
- 临床护理途径不足以满足患有癌症的父母和依赖儿童的需求.
- 家庭需要在沟通和理解可用资源方面得到支持.
- 需要针对高度困难的家庭进行量身定制的干预.
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