单边多囊性失塑性脏管理:一项全国调查
Matthew J Harmer1,2, Douglas J Stewart3,4, Pallavi Prasad5
1Department of Paediatric Nephrology, Southampton Children's Hospital, University Hospital Southampton NHS Foundation Trust, Southampton, UK.
Clinical pediatrics
|June 6, 2023
概括
英国儿科医生对单边多囊性形 (MCDK) 的管理有很大的差异. 这凸显了对标准化的随访途径的需要,以确保为患有MCDK的儿童提供最佳的护理,并减少不必要的调查.
科学领域:
- 儿科脏病学 儿科脏病学
- 泌尿器科 泌尿器科 泌尿器科 泌尿器科
- 医疗保健管理的管理
背景情况:
- 单侧多囊性形 (MCDK) 需要随访,因为存在逆侧异常和慢性病的风险.
- 当前的管理实践在专家之间显示出相当大的差异.
研究的目的:
- 评估目前英国儿科医生对单方面MCDK的管理策略.
- 识别诊断,治疗和随访方法的变化.
- 评估国家指导和相关成本的感知影响.
主要方法:
- 进行了一项针对英国高级儿科医生的全国性调查.
- 收集的数据包括诊断方法,随访频率,切除术率和成本估计.
- 分析了60个响应.
主要成果:
- 在使用二分酸扫描 (62%),囊图 (8%) 和功能监测 (62%) 方面存在显著差异.
- 切除术率很低 (25%在5年内被召回).
- 估计的后续费用范围很大 (258英至3854英).
结论:
- 对于单方面MCDK管理,显然需要一个标准化的临床途径.
- 标准化旨在减少变异性,确保早期识别高风险患者,并优化资源利用.
- 平衡共识,安全变化和以家庭为中心的护理至关重要.
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