社区参与健康相关数据可视化开发:范围审查
Darren Chau1, José Parra2, Maricel G Santos3
1University of California Berkeley, Berkeley, California, USA.
概括
社区在健康数据可视化方面的参与是有限的,特别是对于弱势群体. 未来的努力应优先考虑用户参与,文化敏感性,并赋予社区作为数据讲故事者的权力.
科学领域:
- 公共卫生 公共卫生
- 数据科学数据科学数据科学
- 基于社区的参与式研究
背景情况:
- 关于社区参与开发人口健康数据可视化的有限文献.
- 有效的数据可视化需要了解社区的需求和背景.
研究的目的:
- 在数据可视化开发中综合社区参与活动的文献.
- 在健康数据的社区-研究人员伙伴关系中描述"创造性数据素养".
主要方法:
- 根据PRISMA-ScR指南 (2010-2022) 的范围审查.
- 搜索了PubMed,科学网和谷歌学者.
- 应用社区参与工具来分类参与水平,社会决定因素和弱势群体.
主要成果:
- 审查了27篇文章,其中12篇涉及弱势群体.
- 13篇文章考虑了健康的社会决定因素.
- 16项研究使用了与预期用户的代方法;很少有人表现出"创造性数据素养".
结论:
- 社区参与健康数据可视化发展需要加强.
- 建议包括持续的用户参与,解决语言/文化障碍,并赋予用户作为讲故事者的权力.
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