"他告诉我我的痛苦是在我的头":通过同行支持减轻证词不公正
Marie Vigouroux1,2, Gillian Newman3, Kristina Amja4
1Department of Integrated Studies in Education, Faculty of Education, McGill University, Montreal, QC, Canada.
Frontiers in pain research (Lausanne, Switzerland)
|June 7, 2023
概括
像Curvy Girls这样的同行支持小组帮助患有脊椎病的青少年女孩克服疼痛和耻辱感. 这个社区与负面经历作斗争,培养信心和归属,以改善应对机制.
科学领域:
- 医学社会学 医学社会学
- 青少年健康 青少年健康
- 关于残疾人的研究.
背景情况:
- 残疾妇女面临性别歧视和能力歧视,导致收入较低和具有挑战性的工作条件.
- 患有脊椎病的青少年女孩不成比例地受到疼痛和耻辱的影响,影响教育,职业和社会生活.
- 医疗互动可以加剧偏见和与疼痛相关的耻辱青春期女孩的脊椎病.
研究的目的:
- 探索性别特定的同行支持对减轻患有脊椎病的青少年女孩的不良结果的影响.
- 了解同行支持如何破坏与脊椎病和慢性疼痛相关的负面影响的轨迹.
- 检查交叉性和证词不公正在患有脊椎病的青少年女孩的经历中的作用.
主要方法:
- 用开放式问题的个人访谈进行定性研究.
- 从Curvy Girls的成员收集的数据,Curvy Girls是一个支持女孩和患有脊椎病的年轻女性的同龄人支持小组.
- 分析采用应用的哲学解释学,以交叉性和证词不公正为理论框架.
主要成果:
- 研究参与者的疼痛叙述经常被成年人 (父母,医疗保健提供者) 重新解释,导致自我怀疑.
- 来自Curvy Girls的同行支持减轻了与疼痛和耻辱相关的负面结果.
- 参与者报告说,增加了信心和归属感,提高了他们应对脊椎病的能力.
结论:
- 性别特定的同行支持是有效的抵消证词不公正和负面的健康结果的青少年女孩与脊椎病.
- 基于社区的同行支持小组可以赋予年轻女性管理慢性疼痛和相关的耻辱感的能力.
- 通过同行支持获得的归属感和信心改善了青少年女孩患有脊椎病的整体幸福感和应对策略.
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