长期复杂区域性疼痛综合征-I型:未截肢患者的观点
Patrick N Domerchie1, Pieter U Dijkstra1,2, Jan H B Geertzen1
1University of Groningen, University Medical Center Groningen, Department of Rehabilitation Medicine, Groningen, The Netherlands.
概括
由于复杂区域疼痛综合征I型 (CRPS-I) 而被拒绝截肢的患者经常经历进一步治疗后疼痛和运动能力的改善. 然而,许多人仍然希望截肢,并且与截肢者相比,报告生活质量较差.
科学领域:
- 疼痛医学 医学 疼痛医学
- 康复医学 康复医学 康复医学
- 精神病体医学是一种精神病体医学.
背景情况:
- 复杂区域性疼痛综合征I型 (CRPS-I) 是一种使人虚弱的疾病,通常导致截肢作为最后手段.
- 并非所有CRPS-I患者都是截肢的候选人,需要采用替代的治疗策略.
- 了解被拒绝截肢的CRPS-I患者的生活质量对于优化护理至关重要.
研究的目的:
- 调查被拒绝截肢的CRPS-I患者的生活质量和功能状态.
- 探索患者经验和截肢后接受的治疗方法.
- 为了比较CRPS-I患者被拒绝截肢的结果与那些接受截肢的人.
主要方法:
- 追溯的病例系列涉及37名患者在2011年至2017年期间被拒绝截肢.
- 与13名参与患者进行了探索性访谈,重点关注生活质量和治疗经验.
- 功能性结果与之前的CRPS-I患者的研究队列进行了比较,这些患者经历了截肢.
主要成果:
- 大多数接受采访的患者在被拒绝截肢后,报告说疼痛,流动性和整体健康状况有所改善.
- 所有参与者都接受了随后的治疗,有些人取得了积极的结果.
- 很大一部分人 (13人中有9人) 仍然表示希望截肢,参与者普遍报告说,与截肢者相比,生活质量更差.
结论:
- 切断CRPS-I的截肢应该考虑只有在耗尽了所有保守和干预治疗选项后.
- 许多CRPS-I患者被拒绝截肢,可以在继续治疗时经历功能改善.
- 患者参与截肢决策需要进一步关注,以提高满意度和结果.
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