在性别确认手术中,患者报告的结果衡量了患者报告的结果
Manraj Kaur1, Shane Morrison2, Andrea Pusic3
1Canadian Institutes of Health Research-funded fellow at the Patient-Reported Outcomes, Value, and Experience Center at Brigham and Women's Hospital in Boston, Massachusetts.
AMA journal of ethics
|June 7, 2023
概括
患者报告的结果指标 (PROM) 对于评估患者的福祉和功能至关重要. 开发相关的PROM,如性别认证护理的GENDER-Q,可以确保更好的患者教育和明智的决策.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者为中心的结果.
- 性别确认护理研究研究
背景情况:
- 患者报告的结果指标 (PROM) 是评估患者健康状况和功能健康的重要工具.
- PROMs的开发和验证需要严格的混合方法方法,并需要大量的患者参与.
- 特定于性别肯定护理的PROM对于解决独特患者需求至关重要.
研究的目的:
- 突出在医疗保健中强有力的PROM开发的重要性.
- 强调性别特异性PROM,如GENDER-Q在性别肯定护理中的实用性.
- 强调PROMs在改善患者教育,预期调整和研究方面的作用.
主要方法:
- 采用混合方法,多步骤的方法来开发和验证PROM.
- 在整个开发过程中纳入广泛的患者投入.
- 在性别确认护理和手术的背景下,应用性别特定的PROM.
主要成果:
- 在患者的投入下开发的PROM更容易理解,更全面,更相关.
- 像GENDER-Q这样的性别特异性PROM增强了患者教育,并使预期与外科手术结果保持一致.
- PROM数据有助于比较有效性研究和基于证据的决策.
结论:
- 发达的PROM对于以患者为中心的护理至关重要.
- 肯定性别的护理显著受益于专门的PROM,以改善患者的治疗结果和公平的获得.
- PROM数据有助于推进共享决策,并确保公平获得性别确认的外科护理.
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