药剂师是为患有罕见疾病的患者提供息护理的发起者
1University Hospitals Leuven, Leuven, Belgium. marc.dooms@uzleuven.be.
Orphanet journal of rare diseases
|June 8, 2023
概括
社区药剂师在息治疗中至关重要,确保及时获取和药物管理. 他们的参与减少了住院病例,并优化了慢性和罕见疾病患者的医疗保健服务.
科学领域:
- 抚慰性护理是一种缓解性护理.
- 社区药房实践 社区药房实践
- 罕见疾病 罕见疾病
背景情况:
- 世界卫生组织倡导早期缓和护理,以减少住院和医疗保健浪费.
- 社区药剂师有能力促进人们获得息护理服务.
- 罕见的疾病,通常是遗传的,缺乏治疗方法,并面临诊断延迟.
研究的目的:
- 突出社区药剂师在早期息护理中的关键作用.
- 强调支持息和终端护理的制药活动.
- 为了强调对罕见病患者综合护理的需要.
主要方法:
- 对息治疗指导方针和制药角色的审查.
- 分析药物调和作为缓解护理讨论的触发因素.
- 在息护理中药物服务的描述.
主要成果:
- 药剂师可以倡导及时获得息治疗.
- 药物调和促使患者与家人就护理目标进行必要的沟通.
- 关键的制药活动包括发行药品,化合物和团队合作.
结论:
- 社区药剂师是优化息和终端护理的重要组成部分.
- 药剂师的早期干预可以改善患者的治疗结果和资源利用率.
- 加强药剂师的参与对于管理罕见疾病的复杂需求至关重要.
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