改善生活在罕见骨病 (RBDs) 患者的护理途径:第一个RBD峰会的成果

Manju Chandran1, Ines Alves2, Thomas Carpenter3

  • 1Osteoporosis and Bone Metabolism Unit, Department of Endocrinology, Singapore General Hospital, DUKE NUS Medical School, Singapore, Singapore. mchandran7@gmail.com.

概括

罕见的骨病 (RBD) 存在重大挑战,包括诊断延迟和有限的治疗选择. 在RBD峰会召集了专家,制定了一项行动计划,以提高意识,护理途径和沟通,以推进罕见骨疾病的结果.

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