识别阻塞性睡眠障碍呼吸护理障碍:父母的观点
W Nicholas Jungbauer1, Kathy Zhang1, Cathy L Melvin2
1Department of Otolaryngology - Head and Neck Surgery, Medical University of South Carolina, Charleston, SC, USA.
父母在寻求儿科阻塞性睡眠呼吸障碍 (SDB) 护理时,面临着重要的实际障碍,如预约可用性和成本. 中等收入家庭遇到的挑战最多,父母对SDB和桃体切除术的整体知识很低.
科学领域:
- 儿科睡眠医学 儿科睡眠医学
- 医疗保健的不平等 医疗保健的不平等
- 公共卫生 公共卫生
背景情况:
- 儿科阻塞性睡眠呼吸障碍 (SDB) 很常见,但尽管有既定的指导方针,护理方面的差异仍然存在.
- 父母的经验和对SDB评估和治疗的感知障碍没有得到充分记录.
- 了解这些障碍对于改善公平获得护理至关重要.
研究的目的:
- 评估家长对儿童SDB和桃体切除术的知识.
- 识别家长对获得SDB评估和治疗孩子的障碍.
- 调查这些障碍的社会经济预测因素.
主要方法:
- 对被诊断患有SDB的孩子的父母进行了横截面调查.
- 经过验证的问卷包括护理障碍问卷和父母的阻塞性睡眠障碍呼吸和腺切除术知识量表.
- 后勤回归分析确定了障碍和知识的预测因素.
主要成果:
- 实用性挑战,如预约可用性和医疗保健费用,是报告中最常见的障碍.
- 与高收入和低收入层相比,中等收入的父母 (26,500-79,500美元) 报告障碍的几率明显更高.
- 孩子接受了桃体切除术的父母在SDB知识量表上平均得分为55.7%.
结论:
- 实际和财务方面的挑战严重阻碍了儿童获得SDB护理的机会.
- 中等收入家庭面临着不成比例地更大的障碍,无法获得SDB护理.
- 父母对SDB和桃体切除术知识较低,凸显了有针对性的教育干预措施的必要性,以促进公平的护理.
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