一份工作表,以促进对转移性癌症患者的价值观讨论:试点研究
Noah J Mathis1, Hadley Maya2, Amanda Santoro1
1Department of Radiation Oncology (N.J.M., A.S., D.Y.), Memorial Sloan Kettering Cancer Center, New York, New York, USA.
Journal of pain and symptom management
|June 11, 2023
概括
一个新的价值观工作表可以帮助转移性癌症患者在家里讨论目标和价值观. 这项试点研究发现该工具是可行的,也是值得推的,尽管一些患者经历了痛苦.
科学领域:
- 抚慰性护理是一种缓解性护理.
- 医学伦理 医学伦理
- 在瘤学瘤学.
背景情况:
- 患者的价值观和目标是严重疾病医疗决策的核心.
- 目前临床医生的策略,以引起患者的价值往往是耗时和有限.
- 需要有效的工具来促进患者对个人价值观的反思.
研究的目的:
- 开发和试验一种新的干预措施,价值观工作表,用于家庭患者反思和讨论目标和价值观.
- 评估这种干预在转移性癌症患者群体中的可行性和患者的看法.
主要方法:
- 将现有的严重疾病沟通指南改编为工作表格,并获得前患者和家人的意见.
- 向28名转移性癌症患者分发了"价值工作表".
- 调查参与者对他们对工作表可行性和实用性的看法进行了调查.
主要成果:
- 在30名接触患者中,有28名患者参与;17名患者完成了工作表.
- 在11名调查受访者中,65%的人认为工作表是利用时间的好方法,82%的人会推它.
- 大多数参与者报告了轻微的痛苦,20%的人经历了中度到严重的痛苦.
结论:
- 价值观工作表是一种可行的方法,可以在选择的转移性癌症患者中促进家庭讨论目标和价值观.
- 进一步的研究应该确定最有可能受益的患者子组,并将工作表纳入更广泛的严重疾病传播策略中.
- 工作表可以作为医生领导的严重疾病对话的宝贵补充.
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