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两种癌症注册表质量检查系统的比较:意大利癌症注册表网络数据集的功能特征和差异
Giovanna Tagliabue1, Viviana Perotti1, Sabrina Fabiano1
1Cancer Registry Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy.
两种用于癌症注册数据质量控制的计算机系统进行了比较. 两种系统都发现了很少的错误,但在问题的分类上有所不同,突出了需要均衡的数据质量标准和实际实施的需要.
科学领域:
- 在瘤学瘤学.
- 生物统计学 生物统计学
- 医疗信息学 医疗信息学
背景情况:
- 癌症登记册对于流行病学研究和患者护理至关重要.
- 确保癌症注册数据的准确性和完整性对于可靠的统计数据至关重要.
- 基于计算机的系统有助于对大型癌症数据集的质量控制.
研究的目的:
- 为了比较两个基于计算机的系统的功能特征,用于癌症注册数据质量控制.
- 分析世卫组织国际癌症研究机构 (IARC) 和联合研究中心 (JRC) -欧洲癌症登记处网络 (ENCR) 系统之间的输出差异.
- 评估这些系统在识别癌症发病率数据中的错误和警告方面的有效性.
主要方法:
- 利用来自22个意大利注册 (1986-2017) 的癌症发病率数据.
- 应用了两个不同的数据检查系统:世卫组织国际癌症研究机构 (IARC) 和联合研究中心 (JRC) -欧洲癌症注册表网络 (ENCR).
- 分析和比较两个系统在同一数据集上生成的输出.
主要成果:
- 该数据集包括1,305,689例具有高整体质量的癌症病例 (86%通过显微镜验证).
- 两种系统检测到的错误百分比很低 (JRC-ENCR:0.17%,IARC:0.003%) 和类似的警告比例.
- 在错误/警告分类方面注意到了差异,JRC-ENCR专注于TNM分期,IARC专注于瘤等级/形态组合.
结论:
- 两种系统都有效地检查了共同的变量,但JRC-ENCR包括额外的检查 (例如,患者随访,瘤阶段).
- 虽然分类问题不同,但这些系统往往解决相同的数据质量问题.
- 在严格的数据质量标准和癌症登记册的实际工作流程之间实现最佳平衡至关重要.
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