小细胞肺癌的症状和经验:对患者和护理人员的混合方法研究
D Gwyn Bebb1,2, Cressida Murray3, Andromachi Giannopoulou4
1Global Development, Amgen, One Amgen Centre Drive, Thousand Oaks, CA, 91320, USA. dbebb01@amgen.com.
Pulmonary therapy
|June 13, 2023
概括
这项研究表明,小细胞肺癌 (SCLC) 显著影响患者和护理人员,疲劳和呼吸短促等症状是最麻烦的. 了解这些负担对于更好的SCLC护理至关重要.
科学领域:
- 在瘤学瘤学.
- 患者报告的结果
- 定性研究是指质量研究.
背景情况:
- 在小细胞肺癌 (SCLC) 中,患者感知到的症状负担的理解有限.
- 需要识别影响健康和患者/护理人员体验的关键症状.
研究的目的:
- 探索患者对SCLC的经验.
- 确定最具影响力的治疗/疾病相关症状.
- 从无薪护理人员那里收集观点.
主要方法:
- 非干预性,横截面,混合方法研究 (2021年4月至6月).
- 成年SCLC患者和无偿护理人员参与了这项研究.
- 通过视频日记,采访和在线社区板收集的数据.
主要成果:
- 包括9名患者 (5名扩展阶段[ES],4名有限阶段[LS]) 和9名护理人员.
- 最具影响力的症状:ES-SCLC (呼吸短促,疲劳,咳,胸痛,恶心/吐);LS-SCLC (疲劳,呼吸短促).
- SCLC对ES患者的身体,社会和情感福祉产生了重大影响;LS患者面临治疗效应,财务和预后问题. 护理人员报告了高负担.
结论:
- 提供了了解患者/护理人员对SCLC负担的感知.
- 告知未来SCLC研究的设计.
- 强调临床医生在治疗决策中需要考虑患者的优先事项.
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