探索照顾患有神经性正静性低血压的个体的影响:一种定性研究
Katy Gallop1, Ngan Pham2, Grant Maclaine3
1Acaster Lloyd Consulting Ltd, London, WC1X 8NL, UK.
Neurodegenerative disease management
|June 14, 2023
概括
照顾神经性正静性低血压 (nOH) 患者显著影响非正式照顾者. 患者害怕摔倒会造成严重的焦虑,压力和情绪困扰,影响日常生活.
科学领域:
- 神经学 神经学
- 护理人员支持护理人员支持
- 自主性功能障碍 自主性功能障碍
背景情况:
- 神经性正静性低血压 (nOH) 是一种影响自主神经系统调节的慢性疾病.
- nOH通常与神经退行性疾病有关,如帕金森病和勒维体痴呆症.
- 关于nOH对非正式照顾者的影响仍未得到充分研究.
研究的目的:
- 调查照顾患有NOH的人对非正式照顾者的多方面的影响.
- 确定护理人员经历的具体挑战和影响.
- 开发一个概念模型,说明护理人员的经验.
主要方法:
- 与20名非正式的护理人员进行了半结构化访谈,这些护理人员是患有nOH的个体.
- 护理人员的疾病包括帕金森病,多重系统缩,纯自主性衰竭或患有莱维体的痴呆症.
- 用专题分析来分析采访数据并构建一个概念模型.
主要成果:
- 照顾者报告说,这对他们的时间,自由,身体健康,工作和社交生活产生了重大影响.
- 一个主要的问题是需要监督患者以防止跌倒,导致恐惧和焦虑.
- 通常报告的负面情绪影响包括压力,焦虑,抑郁和丧.
结论:
- 照顾患有nOH的人对非正式的照顾者来说是一个巨大的负担.
- 对于护理人员来说,害怕病人跌倒是一个特别令人痛苦的方面.
- 了解这些影响对于制定针对性支持策略对于nOH护理人员至关重要.
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