针对差异化甲状腺癌患者的患者决策辅助:开发过程和α和β测试
Anna Koot1,2, Rosella Hermens3, Petronella Ottevanger4
1Radboud Institute for Health Sciences, Department for Health Evidence, Radboud University Medical Center, Nijmegen, Netherlands.
Frontiers in endocrinology
|June 16, 2023
概括
患者决策辅助工具 (PtDA) 是为面临手术或氨酸激酶抑制剂治疗决策的差异化甲状腺癌 (DTC) 患者开发的. 这些工具被发现是可以接受的,可用的,可读的,并有助于明智的决策.
科学领域:
- 在瘤学瘤学.
- 医疗信息学 医疗信息学
- 以患者为中心的护理
背景情况:
- 差异化甲状腺癌 (DTC) 提出了复杂的治疗决策,包括低风险病例的手术程度和晚期瘤的铁酸激酶抑制剂 (TKI) 启动.
- 患者决策辅助器 (PtDAs) 对于在这些场景中促进共享决策至关重要.
研究的目的:
- 开发和评估基于证据的患者决策辅助工具 (PtDAs),用于差异化甲状腺癌 (DTC) 的两个关键治疗决策.
- 通过对患者和医生进行代测试,评估这些PtDA的可用性,可接受性和有用性.
主要方法:
- 根据国际患者决策辅助标准 (IPDAS) 的标准制定了PtDA,并结合了文献,指南和患者价值观.
- 代开发涉及对8名患者和10名医生进行alpha测试,随后对20名患者进行beta测试.
主要成果:
- 阿尔法测试表明PtDAs的接受度和可用性很高.
- 贝塔测试显示,20名患者中有18名发现PtDA可读且有用,所有患者都建议使用它们.
结论:
- 基于证据的PtDA已成功创建用于关键的DTC治疗决策.
- 开发的PtDAs被评估为清晰,平衡和有益于患者决策.
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