关于定义新生儿严重疾病的家长观点
Katherine F Guttmann1, Gabriella N Raviv1, Christine A Fortney2
1Division of Newborn Medicine, Department of Pediatrics, The Icahn School of Medicine at Mount Sinai, New York, New York, USA.
Journal of palliative medicine
|June 16, 2023
概括
家长们在很大程度上支持对新生儿严重疾病的定义,但更喜欢更简单的语言进行沟通. 这种定义可能有助于研究和临床护理,但需要仔细沟通,以弥合家长和医生的观点.
科学领域:
- 新生儿医学 新生儿医学
- 儿科 儿科 儿科
- 医疗保健通讯 医疗保健通讯
背景情况:
- 定义新生儿严重疾病对于临床护理和研究至关重要.
- 了解父母的观点对于有效的医疗保健沟通至关重要.
研究的目的:
- 探索父母对新生儿严重疾病的概念化.
- 为了比较父母和医生对新生儿严重疾病的定义的观点.
主要方法:
- 一项前性调查研究,涉及新生儿重症监护病房患者的父母.
- 使用了修改后的调查,对定义组件进行排名,并对自由文本响应进行了主题分析.
主要成果:
- 88%的家长同意新生儿严重疾病的拟议定义.
- 父母建议使用更少的术语和更简单的语言进行沟通.
- 确定了父母和医生对严重疾病的看法之间的差异.
结论:
- 拟议的定义对研究和临床识别患有严重疾病的新生儿有潜在的用处.
- 父母的意见强调了需要量身定制的沟通策略,避免对家庭的定义的字面使用.
- 承认不同的看法是改善新生儿重症监护中家长提供者沟通的关键.
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