患者对切除结直肠癌后果的看法:一种定性研究
Robert T van Kooten1, Bianca A M Schutte2, Dorine J van Staalduinen2
1Department of Surgery, Leiden University Medical Center, Leiden, The Netherlands.
结肠直肠癌手术会导致诸如肠道功能障碍和恐惧复发等挑战. 然而,患者报告说,这些问题没有显著影响治疗后的日常生活.
科学领域:
- 在瘤学瘤学.
- 患者报告的结果.
- 生活质量研究生活质量研究
背景情况:
- 结肠直肠癌切除每年影响着许多欧洲患者.
- 越来越多的治疗选择需要了解它们对患者生活的影响.
- 共享决策需要关于治疗后果的全面数据.
研究的目的:
- 探索结直肠癌切除对患者日常生活的影响.
- 确定患者在手术后面临的具体挑战.
- 了解这些挑战如何影响日常运作.
主要方法:
- 包括16名接受瘤结直肠切除 (2018-2021) 的成年患者.
- 使用针对不同患者特征的有目的抽样.
- 进行半结构面试,使用框架方法进行主题分析.
主要成果:
- 患者报告了包括肠道功能不良,口腔,神经病变,恐惧复发和性功能障碍在内的挑战.
- 尽管面临挑战,但参与者表示日常生活的干扰最小.
- 手术后的随访时间从0.6年到4.4年不等.
结论:
- 结肠直肠癌的治疗存在挑战和健康缺陷.
- 这些缺陷往往被患者报告的标准结果措施所忽视.
- 研究结果为改善结直肠癌护理和共同决策提供了洞察力.
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