辅助沟通对患有肌缩侧面硬化症的人的沟通参与的影响
Betts Peters1,2, Jack Wiedrick3, Carolyn Baylor4
1Institute on Development and Disability, Department of Pediatrics, Oregon Health & Science University, Portland.
American journal of speech-language pathology
|June 19, 2023
概括
辅助沟通显著改善了与肌缩侧面硬化症 (PALS) 患者的沟通参与,因为他们的语言下降. 这项技术支持PALS在各种沟通情况下,即使是那些有严重语言障碍的人.
科学领域:
- 神经学 神经学
- 语音语言病理学 语言病理学
- 辅助技术 辅助技术 辅助技术
背景情况:
- 肌缩侧面硬化症 (ALS) 经常导致言语变化,影响沟通和社会参与.
- 有效的沟通策略对于维持ALS (PALS) 患者的生活质量至关重要.
研究的目的:
- 调查辅助通信对PALS.自我评价沟通参与的影响.
- 检查语音功能与PALS中的沟通参与之间的关系,与不同程度的语音障碍和辅助使用有关.
主要方法:
- PALS完成了一项在线调查,评估了沟通方法,语音功能和沟通参与.
- 参与者评价了他们仅使用无辅助通信以及使用包括辅助通信在内的所有通信方法的参与.
主要成果:
- 辅助沟通增强了PALS患有脱节症的沟通参与.
- 使用辅助通信的PALS报告说,当所有方法可用时,与单独使用无辅助方法相比,参与率更高.
- 辅助通信的最显著的好处是在无关节症的参与者中观察到的 (ALSFRS-R语音评分 = 0).
结论:
- 辅助沟通对于PALS来说是一个有价值的工具,可以在语音功能恶化时保持沟通参与.
- 由于自我评估参与的变化,需要个性化增强和替代沟通 (AAC) 干预措施.
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