在新生儿重症监护室 (NICU) 传递坏消息时,父母能得到他们想要的吗?
Mirjam Wege1, Pia von Blanckenburg2, Rolf Felix Maier1
1Children's Hospital, University Hospital, Philipps University of Marburg, Marburg, Germany.
Journal of perinatal medicine
|June 19, 2023
概括
家长对新生儿学中的坏消息 (BBN) 讨论感到中度至高度满意. 满意度的关键因素包括同情,清晰的信息和医生的专业知识,突出了新生儿护理中改善沟通的领域.
科学领域:
- 新生儿科学 新生儿科学
- 儿科手术 儿科手术
- 医学沟通 医学沟通
背景情况:
- 在新生儿重症监护室 (NICU) 中,父母对坏消息 (BBN) 的偏好理解有限.
- 评估父母的经验与他们对BBN与新生儿科医生/儿科外科医生讨论的偏好.
研究的目的:
- 为了将父母的实际经历与他们与新生儿科医生/儿科外科医生进行的第一次坏消息 (BBN) 讨论进行比较,根据他们的个人偏好.
- 在新生儿环境中确定影响父母对BBN满意度的关键因素.
主要方法:
- 在德国新生儿病房中,对54名患有严重疾病的婴儿的父母进行了定量调查.
- 父母使用自我评价问题来评价他们对BBN的看法,偏好和满意度.
主要成果:
- 对BBN的总体满意度中等至高 (中位数为8/10).
- 富有同情心的披露,清晰易懂的信息,以及医生对婴儿状况的了解与满意度有显著的相关性.
- 父母报告说,医生能力的差异是预期的与观察到的差异,讨论的时间不足,缺乏传达的希望.
结论:
- 医生应优先考虑清晰的沟通,证明对婴儿和疾病有充分的了解,并为BBN分配足够的时间.
- 建立信任,传达能力和保持温柔是新生儿学有效BBN的关键.
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