为特殊奥林匹克运动员开发和实施公共卫生联合研究计划
Anna-Mariya Kirova1, Tyler Jakab1, Graham Bartsch1
1School of Public Health, Boston University, Boston, MA, USA.
Research involvement and engagement
|June 19, 2023
概括
这项研究培训了智力和发育障碍 (IDD) 个体作为共同研究人员,使他们在研究中获得权力. 该计划对参与者和特殊奥林匹克运动会项目来说是有益的,尽管资金和时间仍然是障碍.
科学领域:
- 公共卫生 公共卫生
- 关于残疾人的研究.
- 研究方法研究方法研究方法学
背景情况:
- 智力和发育障碍 (IDD) 患者经常被研究,但很少参与研究设计或决策.
- 关于IDD患者的研究很少由残疾研究人员自己进行,这凸显了包容性实践中的差距.
研究的目的:
- 为患有IDD的个人开发和评估联合研究培训计划.
- 加强在研究过程中对IDD患者的纳入.
- 在特殊奥林匹克的背景下,评估这样一个计划的可行性和好处.
主要方法:
- 采用最佳实践和现有资源设计了一个为期六个会议的联合研究培训计划.
- 马萨诸塞州特殊奥林匹克运动会的四名参与者被招募参加2021年秋季训练.
- 项目评估涉及参与者调查,定性访谈和跟踪持续的研究参与,参与者作为评估的合作伙伴.
主要成果:
- 培训计划得到了参与者的好评.
- 同研究人员在培训一年后仍然参与研究项目.
- 联合研究员培训证明了运动员,研究人员和特殊奥林匹克运动会计划的可行性和好处.
结论:
- 共同研究员培训是让IDD患者参与公共卫生研究的可行且有益的模式.
- 训练有素的共同研究人员的持续参与表明了该计划的有效性.
- 解决资金和时间等障碍对于更广泛的计划成功和可持续性至关重要.
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