医疗复杂的儿童从医院到家庭的过渡:第2部分 - 一个核心结果集
Heleen N Haspels1,2, Annemieke A de Lange3, Mattijs W Alsem3,4
1Department of Pediatric Intensive Care Unit, Amsterdam Reproduction and Development, Amsterdam UMC location University of Amsterdam, Emma Children's Hospital, Meibergdreef 9, Amsterdam, The Netherlands.
European journal of pediatrics
|June 20, 2023
概括
为医疗复杂性儿童 (CMC) 从医院过渡到家庭,开发了一套核心结果 (COS). 这一套包括疾病管理,儿童生活质量,家庭影响和父母自我效能,提高了研究的一致性.
科学领域:
- 儿科 儿科 儿科
- 医疗保健服务研究 医疗服务研究
- 患者报告的结果
背景情况:
- 医疗复杂性儿童 (CMC) 从医院到家庭的过渡面临重大挑战.
- 高质量的干预试验需要适当的结果措施,以获得有效的过渡期护理.
- 核心成果集 (COS) 提高了研究的一致性,并改善了儿童和家庭的成果.
研究的目的:
- 确定基于共识的干预研究的核心成果集 (COS),重点关注CMC的医院到家庭过渡.
- 纳入医疗保健专业人员和CMC家长的观点,以确定基本结果.
主要方法:
- 采用了两阶段的方法:与医疗保健专业人员进行三轮Delphi研究,并与CMC的家长聚焦小组.
- 医疗保健专业人员评价了24个预先确定的结果,并建议12个新的结果.
- 家长重点小组验证了Delphi研究的结果,并确定了额外的核心结果.
主要成果:
- 德尔菲研究确定了三个核心结果:疾病管理,儿童的生活质量和对家庭生活的影响.
- 家长重点小组将"家长的自我效能"作为第四个核心结果.
- 开发的COS是以证据为基础的,并基于不同利益相关者的共识.
结论:
- 基于证据的核心成果集 (COS) 已为CMC医院到家庭过渡研究建立.
- 这种COS可以在未来的干预研究中标准化结果报告.
- 下一步是为COS中的每个结果选择合适的测量仪器.
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