皮肤病门诊患者与对照人群之间的感知耻辱:在17个欧洲国家进行的一项多中心观察性研究
Sylvia Van Beugen1, Christina Schut2, Jörg Kupfer2
1Institute of Psychology, Health, Medical and Neuropsychology Unit, Leiden University, Leiden, the Netherlands. s.van.beugen@fsw.leidenuniv.nl.
Acta dermato-venereologica
|June 22, 2023
概括
患有皮肤疾病的患者经历了显著的污名化,影响了他们的心理社会福祉. 关键预测因素包括疾病严重程度,心理困扰和社会人口统计学因素,为受影响个体提供有针对性的干预信息.
科学领域:
- 皮肤病学 皮肤病学
- 心理社会健康 心理健康
- 公共卫生 公共卫生
背景情况:
- 感知到的污名化给患有某些皮肤疾病的个体带来了相当大的心理社会负担.
- 对于各种皮肤疾病的污名化经验的理解有限.
研究的目的:
- 量化患有各种皮肤疾病的患者感知到的污名化.
- 为了确定17个欧洲国家在这一群体中感知到的耻辱化的预测因素.
主要方法:
- 一项观察性,横截面研究,涉及5487名皮肤病门诊患者和2808名皮肤健康对照.
- 通过自我报告问卷收集关于感知耻辱和潜在预测因素的数据.
- 临床医生对皮肤病诊断,疾病严重程度和并发症的评估.
主要成果:
- 患有皮肤疾病的患者报告说,感知到的耻辱感明显高于对照组.
- 牛皮,亚托皮性皮肤炎,脱发症和牛皮性疾病与特别高水平的污名化有关.
- 预测因素包括年龄较小,男性性别,单身,BMI较高,一般健康状况较差,疾病严重程度较大,,疾病持续时间较长,心理困扰,自杀念头,身体形状不佳问题和外表满意度较低.
结论:
- 感知到的污名化是各种皮肤疾病患者中普遍存在的问题.
- 鉴定的因素使临床医生和政策制定者能够针对弱势群体,并开发基于证据的干预措施,以改善患者管理.
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