性别多样性和自闭症问卷:为自闭症跨性别和性别多样性年轻人开发的社区临床,研究和自我宣传工具
John F Strang1,2, Lucy S McClellan1, Daphne Raaijmakers3,4
1Gender and Autism Program, Center for Neuroscience, Children's National Hospital, Washington, District of Columbia, USA.
Autism in adulthood : challenges and management
|June 22, 2023
概括
研究人员为自闭症跨性别年轻人开发了一个新的问卷,让他们分享他们的经验和需求. 该工具旨在提高对这种服务不足的人群的理解和支持.
科学领域:
- 神经多样性研究 神经多样性研究
- 性别认同研究 性别认同研究
- 健康差异 在健康上的差异
背景情况:
- 自闭症变性人面临着独特的社会风险,包括医疗保健准入不平等和心理健康差异.
- 对这一群体来说,对文化敏感的支持至关重要.
- 描述他们的经历,挑战,需求和弹性因素是必不可少的.
研究的目的:
- 为自闭症跨性别年轻人开发一个结构化的自我报告工具.
- 创建一个与自闭症思维和沟通风格保持一致的报告格式.
- 为了促进经验和需求的沟通.
主要方法:
- 性别多样性和自闭症问卷是使用基于社区的代方法开发和改进的.
- 德尔菲面板方法和多输入专家搜索平衡了学术,社区和实践经验的专业知识.
- 一项为期两轮的德尔菲研究,涉及24名专家合作者,在85个项目上达到了90%的共识.
主要成果:
- 调查问卷包括六个关键领域的项目:身份体验,歧视影响,日常生活,护理需求,身份/自闭症怀疑和社区联系.
- 大多数保留的项目集中在日常生活经验和歧视的影响.
- 该乐器具有平行荷兰语和英语版本.
结论:
- 开发的仪器可用于临床,研究和自我宣传应用.
- 未来使用该工具的跨文化研究可以识别上下文风险和弹性因素.
- 这项工作旨在更好地理解和解决自闭症跨性别者所面临的不平等问题.
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