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为膀癌幸存者及其照顾者提供癌症资源和信息支持 (CRIS):开发和可用性测试研究
Michael A Diefenbach1, Allison Marziliano1, Elizabeth J Siembida1
1Institute of Health System Science, Feinstein Institutes for Medical Research, Northwell Health, New York, NY, United States.
JMIR formative research
|June 22, 2023
概括
癌症资源和信息支持 (CRIS) 软件是为帮助膀癌幸存者及其照顾者在囊切除术后管理生活而开发的. 可用性测试表明,该软件易于使用,有利于术后调整.
科学领域:
- 在瘤学瘤学.
- 医疗信息学 医疗信息学
- 数字健康数字健康
背景情况:
- 膀癌幸存者和护理人员在囊切除术后面临实际和心理社会挑战.
- 尿路转移方法和口腔器械管理是关键的实际问题.
- 抑郁和焦虑是这群人面临的重大心理社会挑战.
研究的目的:
- 报告癌症资源和信息支持 (CRIS) 软件的开发和可用性测试情况.
- 改善膀癌幸存者及其照顾者的与健康有关的生活质量和术后结果.
- 为医疗技术领域的软件设计和图形设计提供一个协作平台.
主要方法:
- 与肥胖相关的行为干预试验 (ORBIT) 模型指导软件开发.
- 阶段IA涉及文献审查和临床医生,幸存者和护理人员的反.
- 阶段IB专注于内容定制和可用性测试,共有7名参与者.
主要成果:
- CRIS是一个基于网络的软件资源,用于膀癌幸存者和手术后的护理人员.
- 关键主题包括医疗设备管理,健康维护和生活方式修改.
- 可用性测试显示,CRIS易于使用,集成良好,并具有高度可用性.
结论:
- 克里斯是第一个基于网络的软件,旨在为膀癌幸存者和护理人员适应囊切除术后的生活.
- 开发整合了18个月的专家反,文献评论和可用性测试.
- 目前正在进行一项随机对照试验,以评估CRIS在改善生活质量的有效性.
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