Family-Reflections.com: 创建一个基于网络的父母对父母的工具,关于儿科家庭通风
Holly Hoa Vo1, Benjamin S Wilfond1, Yuanyuan Ding2
1Pediatrics, University of Washington School of Medicine, 1900 Ninth Avenue, Seattle 98101, USA; Treuman Katz Center for Pediatric Bioethics, Seattle Children's Research Institute, 1900 Ninth Ave, Seattle 98101, USA.
Patient education and counseling
|June 22, 2023
概括
一个新的网络工具将面临儿科家庭通风决策的家长与经验丰富的家庭联系起来. 该资源提供了平衡的,以家庭为中心的信息,以帮助决策,并促进和平与所选择的道路.
科学领域:
- 儿科重症监护 儿科重症监护 儿科重症监护
- 家庭为中心的护理.
- 卫生沟通健康沟通
背景情况:
- 通过气管切除术 (家庭通风) 进行儿科机械通风的决定是复杂的.
- 父母寻求同龄人的支持,但将他们与经验丰富的家庭联系起来是具有挑战性的.
- 现有的资源往往缺乏全面的,以家庭为中心的观点.
研究的目的:
- 开发和评估一个基于网络的工具,以促进家长与家长之间的沟通,以便为儿科家庭通风决定.
- 为了提供平衡的,以家庭为中心的信息,通常缺少临床咨询.
主要方法:
- 采访了那些决定支持或反对家庭通风的家长,以指导网站开发.
- 创建了一个基于网络的工具,以复合家庭故事和主题为特色.
- 通过嵌入式调查收集观众反.
主要成果:
- 该工具涉及关键主题:治疗选择,医疗团队沟通,家庭生活影响,人际关系,孩子的经验和短寿命.
- 90%的回顾家庭认为该工具将有助于他们的决策.
- 该工具帮助家庭明确了优先事项,并对他们的决定感到更加平静.
结论:
- 一个新的父母对父母的网络工具可以增强对儿科家庭通风决策的平衡信息的访问权限.
- 该工具提供了宝贵的,以家庭为中心的洞察力,超出了临床医生的指导.
- 该资源支持在复杂的医疗环境中以家庭为中心的知情决策.
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