在获得神经内分泌瘤 (NET) 患者诊断和治疗方面的全球挑战
Sugandha Dureja1, Mark McDonnell2, Dirk Van Genechten3
1CNETS India, New Delhi, India.
Journal of neuroendocrinology
|June 23, 2023
概括
全球神经内分泌瘤 (NET) 患者获得诊断和治疗的机会因地区而异. 这项SCAN调查突出了68Ga-DOTA PET/CT等诊断工具和PRRT等治疗方法的差异,影响了全球的患者护理.
科学领域:
- 在瘤学瘤学.
- 医疗成像医学成像
- 患者护理 患者护理
背景情况:
- 神经内分泌瘤 (NETs) 是一种罕见的瘤,需要专门的诊断和治疗.
- 对于NET患者,在获得先进的诊断和治疗选择方面存在全球差异.
研究的目的:
- 评估全球对神经内分泌瘤 (NET) 患者的诊断,治疗和监测的机会.
- 确定发达国家和新兴/发展中经济体之间的NET护理差异.
主要方法:
- 在2019年9月至11月期间进行了一项在线半标准化调查 (SCAN).
- 该调查包括54名患者和33名医疗保健专业人员 (HCP) 的问题,全球有2359名患者和436名医疗保健专业人员回答.
主要成果:
- 报告了高误诊率 (44%) 和平均4.8年的诊断延迟.
- 获得68Ga-DOTA PET/CT和受体放射性核酸治疗 (PRRT) 的机会因地区而异,特别是亚洲较低,大洋洲较高.
- 与先进经济体 (AE) 相比,新兴和发展中经济体 (EDE) 的患者面临更大的财务障碍,并为NET专家护理而旅行更远.
结论:
- 在NET诊断,先进成像和治疗可访问性方面发现了全球显著的差异.
- 改善NET护理需要加强医疗保健人员的知识,标准化国家护理途径,以及在全球范围内平等获得诊断和治疗.
- 向专业的NET中心和专家推对于改善患者的治疗结果至关重要.
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