在中国背景下CLEFT-Q的可靠性和有效性
Yuzhe Ding1, Wenying Kuang2, Xinyu Zhang1
1School of Stomatology, Wuhan University, Wuhan, China.
概括
一个新的中文版本的CLEFT-Q已经开发和验证,用于患有裂唇和/或裂的患者. 这种患者报告的结果指标证明了对评估这一群体生活质量的良好可靠性和有效性.
科学领域:
- 口腔和牙面部外科手术
- 整形外科 整形外科 整形外科
- 健康 结果 研究 研究 结果
- 心理测量 心理测量 心理测量
背景情况:
- 裂唇和/或 palatal (CL/P) 显著影响患者的生活质量.
- 经验证的患者报告结果测量 (PROM) 对于评估CL/P群体的治疗结果至关重要.
- 现有的PROM可能不适合文化或对CL/P的华语人士进行验证.
研究的目的:
- 将英语CLEFT-Q翻译成一个合适的中文版本,并对其进行文化调整.
- 评估中国CLEFT-Q用于CL/P的中国患者的可靠性和有效性.
- 提供一个文化相关的工具来评估与健康有关的生活质量 (HRQOL).
主要方法:
- 根据国际药物经济学和结果研究协会 (ISPOR) 的指导方针,CLEFT-Q进行了前后翻译.
- 进行了认知报告采访,对中国的CL/P患者进行了采访.
- 可靠性 (克朗巴赫的α,分半) 和有效性 (构造,标准) 在246名患者的队列中进行了评估.
主要成果:
- 最终的中国CLEFT-Q涉及67个项目的调整.
- 观察到高的内部一致性 (克朗巴赫α:0.850.98) 和分半可靠性 (0.850.92).
- 因素分析支持构造有效性,与原来的CLEFT-Q结构保持一致,标准有效性显示出弱至中度的相关性.
结论:
- 中文版本的CLEFT-Q是可靠和有效的患者报告的结果指标.
- 这种工具可以有效地评估中国患有裂唇和/或 palatal 的患者的生活质量.
- 经过验证的中国CLEFT-Q在这个人口群体中促进了文化敏感的结果评估.
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