在医疗复杂性的儿童的医疗保健中,基于残疾的歧视
Stefanie G Ames1, Rebecca K Delaney2, Amy J Houtrow3
1Departments of Pediatrics.
Pediatrics
|June 26, 2023
概括
患有医疗复杂性和残疾的儿童因缺乏知识和冷漠等临床因素而经历医疗歧视. 这种歧视表现为有限的准入,不合格的护理和非人性化,影响了儿科患者的护理.
科学领域:
- 儿科医疗保健 儿科医疗保健
- 关于残疾人的研究.
- 健康 公平 卫生 公平
背景情况:
- 在医疗保健中基于残疾的歧视会对护理质量和获得护理产生负面影响.
- 对于医疗复杂性和残疾儿童的医疗保健歧视经历,人们的理解有限.
- 解决儿科歧视问题对于改善护理结果至关重要.
研究的目的:
- 探索和理解医疗复杂性和残疾儿童在医疗保健中的基于残疾的歧视经验.
- 制定一个概念框架,详细说明这种歧视的驱动因素和表现.
主要方法:
- 与患有医疗复杂性和残疾儿童的照顾者进行了深入的半结构面试.
- 通过国家宣传和研究网络利用有目的的抽样.
- 采用感应性主题分析与数据解释的持续比较.
主要成果:
- 六个新兴的主题形成了基于残疾的歧视的概念框架.
- 发现的驱动因素包括缺乏临床医生的知识,冷漠和假设.
- 它的表现包括有限的可访问性,不符合标准的护理和非人性化.
结论:
- 患有医疗复杂性和残疾的儿童容易受到医疗保健歧视.
- 概念框架强调了歧视的关键驱动因素和表现.
- 了解这些因素对于提高患者护理和促进残疾儿童健康平等至关重要.
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