直肠形儿童进入小学:父母的观点
Cunera M C de Beaufort1,2,3, Joep P M Derikx1,2,3, Marijke E Voskeuil1
1Department of Pediatric Surgery, Emma Children's Hospital Amsterdam UMC, Location University of Amsterdam, Meibergdreef 9, 1105 AZ Amsterdam, The Netherlands.
Children (Basel, Switzerland)
|June 28, 2023
概括
许多患有直肠形 (ARM) 儿童的家长面临着学校所设施和学校支持方面的挑战. 需要改善学校指导和教育,以更好地适应这些孩子.
科学领域:
- 儿科外科手术 儿科外科手术
- 公共卫生 公共卫生
- 儿童发展 儿童发展
背景情况:
- 患有直肠形 (ARM) 的儿童经常经历节问题.
- 父母对学校所设施和学校对ARM儿童的支持的经验并未得到充分理解.
研究的目的:
- 评估父母在荷兰小学使用所设施的经验.
- 评估荷兰小学如何管理患有ARM的儿童.
主要方法:
- 与国家患者倡导团体 (PAG) 共同开发了一项调查.
- 招聘涉及PAG和ARM专业知识中心.
- 患有ARM的学龄儿童 (3-12岁) 的家长参与了.
主要成果:
- 61名家长回答了 (31.9%的响应率).
- 23%的家长表示,他们很难找到一所小学.
- 学校的所设施通常是可访问的 (78.7%) 和干净的 (65.6%).
- 家长与学校的经验是混合的:37.7%是积极的,9.8%是消极的,34.4%是混合的,16.4%是中立的.
结论:
- 大约有25%的家长在招收孩子上小学时遇到了挑战.
- 近45%的家长报告了学校的负面经历.
- 显然需要加强学校指导和优化对ARM儿童的教育策略.
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