智力和发育残疾人的生活质量:报告之间的一致性效应
Miguel Jacinto1,2,3, Filipe Rodrigues2,3, Diogo Monteiro2,3,4
1Faculty of Sport Sciences and Physical Education, University of Coimbra, 3040-248 Coimbra, Portugal.
Healthcare (Basel, Switzerland)
|June 28, 2023
概括
第三方报告往往低估了智力和发育障碍 (IDD) 患者的生活质量 (QoL). 包括自我报告对于准确的QoL评估和个性化的支持计划至关重要.
科学领域:
- 卫生科学 卫生科学 卫生科学
- 心理学 心理学 心理学
- 关于残疾人的研究.
背景情况:
- 评估生活质量 (QoL) 对于创建个性化支持计划和改善智力和发育障碍 (IDD) 患者的结果至关重要.
- 了解个人自我认知与第三方对其质量生活的认知之间的一致性,对于有效的支持至关重要.
研究的目的:
- 评估IDD和他们的家庭成员/护理人员/参考技术人员的制度化个体的QoL感知之间的协议.
- 确定IDD和第三方报告员之间的个人在QoL评估中的差异.
主要方法:
- 一项涉及42名参与者的研究:21名患有轻度至重度IDD的个人和21名相应的家庭成员/护理人员/参考技术人员.
- 使用个人成果尺度 (葡萄牙语版本) 收集自我报告和第三方关于QOL的报告.
主要成果:
- 在个人发展,情感健康,身体健康和总体体质量领域的自我报告和第三方报告之间观察到显著差异 (p < 0.05).
- 第三方报告主要低估了IDD个人的QoL,在任何QoL领域都没有发现一致性.
结论:
- 自我报告对于IDD患者准确的QOL评估至关重要.
- 虽然第三方报告可能低估了QoL,但它们的纳入促进了利益相关者之间的沟通和共享理解,最终促进了IDD及其家属的QoL.
相关概念视频
Intellectual Disability
120
Intellectual disability (ID) is a neurodevelopmental condition characterized by deficits in intellectual and adaptive functioning that manifest during the developmental period. This condition encompasses challenges in reasoning, memory, problem-solving, and learning, accompanied by impairments in everyday life skills, such as communication, self-care, and social interactions. Intellectual disability affects approximately 1% of the population in the United States, impacting an estimated 5...
120
Learning Disabilities
220
Learning disabilities are cognitive disorders caused by neurological impairments that affect cognitive functions like language and reading, without indicating overall intellectual or developmental challenges. These disabilities differ from global intellectual or developmental disabilities as they are limited to distinct cognitive functions. Common learning disabilities include dysgraphia, dyslexia, and dyscalculia, each of which impacts unique aspects of learning.
Dyslexia
Dyslexia is a...
Dyslexia
Dyslexia is a...
220
Self-Report Tests of Personality
392
Self-report inventories are objective personality assessments that use multiple-choice items or numbered scales, typically ranging from 1 (strongly disagree) to 5 (strongly agree). They are often called Likert scales after Rensis Likert. These inventories are widely used due to their ease of administration and cost-effectiveness. One of the most prominent examples is the Minnesota Multiphasic Personality Inventory (MMPI), initially developed in the 1940s to assess abnormal personality traits.
392
Self-Evaluation: Self-Enhancement and Self-Verification
5.2K
Social psychologists have documented that feeling good about ourselves and maintaining positive self-esteem is a powerful motivator of human behavior (Tavris & Aronson, 2008). In the United States, members of the predominant culture typically think very highly of themselves and view themselves as good people who are above average on many desirable traits (Ehrlinger, Gilovich, & Ross, 2005). Often, our behavior, attitudes, and beliefs are affected when we experience a threat to our...
5.2K
Self-Discrepancy Theory
18.4K
One influential perspective on what motivates people's behavior is detailed in Tory Higgin's self-discrepancy theory (Higgins, 1987). He proposed that people hold disagreeing internal representations of themselves that lead to different emotional states.
18.4K
Measures of Intelligence
7.7K
Psychologists measure intelligence by using standardized tests that produce a score known as the intelligence quotient or IQ. To understand IQ tests, it's important to recognize the key principles behind their construction: validity, reliability, and standardization.
Validity refers to how well a test measures what it claims to measure. An intelligence test should accurately assess intelligence rather than another characteristic, like anxiety. Criterion validity is one way to evaluate this;...
Validity refers to how well a test measures what it claims to measure. An intelligence test should accurately assess intelligence rather than another characteristic, like anxiety. Criterion validity is one way to evaluate this;...
7.7K


