阐明儿童对手臂出生损伤的理解
Michelle Goldsand1, Kathleen Lai1, Kristen Davidge2,3
1Department of Occupational Sciences and Occupational Therapy, University of Toronto, Toronto, ON, Canada.
概括
带有腕出生损伤的儿童通过生活经验来理解他们的情况,而不是医学术语. 根据他们的功能关注和情绪准备量身定制信息传递对于更好的理解和福祉至关重要.
科学领域:
- 儿科医学 儿科医学 儿科医学
- 儿童心理学 儿童心理学
- 康复科学是康复的科学.
背景情况:
- 医疗信息的有效沟通对于儿童的健康结果和心理社会调整至关重要.
- 了解孩子们如何看待他们的病情对于开发适当的信息传递策略至关重要.
研究的目的:
- 探索手臂出生损伤的儿童如何理解他们的状况.
- 确定影响儿童理解医疗信息的因素.
- 为儿童患者提供医疗信息的最佳实践提供信息.
主要方法:
- 采用了一种解释性的定性方法.
- 与儿童 (n=8) 和他们的照顾者 (n=10) 进行了深入采访.
- 用专题分析来分析采访数据.
主要成果:
- 儿童主要通过功能性和心理社会生活经验来理解臂结节的出生损伤,专注于运动和外观.
- 与经验理解相比,医疗信息的理解程度较低.
- 年龄,情绪准备和先前知识影响了儿童学习诊断和预后细节的能力.
- 儿童需要在了解预后和未来影响方面得到更多的支持.
结论:
- 信息传递应优先解决儿童的主要功能和心理社会问题.
- 在生活经验中将医疗信息置于上下文中,可以增强理解.
- 评估儿童的情绪准备对于有效的医疗信息传递至关重要.
- 改善对预后的理解对于患有腕出生损伤的儿童至关重要.
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