患有赫施普朗格病的儿童的饮食和肠道功能:开发和内容验证患者报告的问卷
Lovisa Telborn1,2, Christine Kumlien3,4, Christina Granéli5,6
1Department of Clinical Sciences Lund, Lund University, Lasarettsgatan 48, S-221 85, Lund, Sweden. lovisa.telborn@med.lu.se.
开发了一个新的问卷以了解饮食如何影响儿童的肠道功能,包括那些患有春症的儿童.
科学领域:
- 儿科胃肠病学 儿科胃肠病学
- 患者报告的结果
- 饮食科学 饮食科学
背景情况:
- 对于儿科肠道症状而言,饮食调整是常见的,但对饮食影响的证据有限.
- 需要工具来探索饮食对儿童肠道功能的影响,特别是那些患有赫施普朗格病 (HD) 的儿童.
研究的目的:
- 为儿童开发和验证患者报告的结果工具,以评估饮食对肠道功能的影响.
- 探索儿童与饮食和肠道功能的经验,包括那些有和没有HD.
主要方法:
- 焦点小组和基于文献的调查问卷项目开发.
- 通过半结构面试和试点测试来评估内容的有效性.
- 林塔拉肠功能评分被用来评估儿童的肠功能.
主要成果:
- 13名儿童和18名家长参与了验证过程.
- 问卷单项需要精细化,以提高清晰度和理解力,特别是在特定症状和父母情绪等敏感主题上.
- 最后的问卷包括13个关于食物的重要性的问题和90个特定食品对肠道功能,情绪和社会影响的影响.
结论:
- 制定了饮食和肠功能调查问卷,并对儿童自我管理的内容进行了定性验证.
- 这种经过验证的仪器可以增强对饮食对儿科肠功能影响的理解.
- 结果可以支持改善儿童的饮食治疗策略.
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