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Updated: Jul 25, 2025

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遗传咨询师的研究传播实践和态度
Emma Blanche1, Tasha Wainstein2, Alivia Dey3,4
1Center for Molecular Medicine and Genetics, Wayne State University, Detroit, Michigan, USA.
Journal of genetic counseling
|June 29, 2023
概括
遗传咨询师认识到广泛分享研究结果以及与研究参与者分享研究结果的重要性. 然而,资源和知识障碍阻碍了传播,这表明需要正式培训和指导方针.
科学领域:
- 卫生沟通健康沟通
- 遗传咨询研究遗传咨询研究
背景情况:
- 向包括研究参与者在内的多种受众传播研究结果提供了显著的好处.
- 返回汇总结果给参与者并不是一个常见的做法,尽管它的价值.
- 遗传咨询师,凭借他们的沟通专业知识,在改善研究传播方面处于有利地位.
研究的目的:
- 探索遗传咨询师关于传播研究成果的现行做法和意见.
- 确定遗传咨询师在向参与者和更广泛的受众传播研究时的障碍和促进因素.
主要方法:
- 一项由32个多项选择和开放式问题组成的调查分发给了国家遗传咨询师协会 (NSGC) 和加拿大遗传咨询师协会 (CAGC) 的成员.
主要成果:
- 超过90%的受访者认为自己有责任传播研究成果.
- 所有受访者都认为向参与者传达总体结果有价值,但超过一半的人从未这样做过.
- 遗传咨询师报告说,资源和知识的局限性是研究传播的障碍.
结论:
- 遗传咨询师面临着与其他健康研究人员相似的传播挑战,尽管他们的沟通技巧.
- 需要正式培训和专业指导方针,以赋予遗传咨询师在研究传播方面的权力.
- 加强传播实践可以最大限度地提高遗传研究成果的影响.
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