在患有转移性乳腺癌的妇女中描述独特的支持性护理需求:一种定性研究
Patricia I Moreno1,2, Blanca Noriega Esquives1, Jessica L Thomas3
1Department of Public Health Sciences, University of Miami Miller School of Medicine, Miami, FL.
Journal of psychosocial oncology research and practice
|June 29, 2023
概括
患有转移性乳腺癌的妇女有独特的心理社会和身体需求,因为他们的预后限制了生命. 解决这些未满足的需求对于改善他们的生活质量和福祉至关重要.
科学领域:
- 在瘤学瘤学.
- 抚慰性护理是一种缓解性护理.
- 精神瘤学 精神瘤学
背景情况:
- 转移性乳腺癌 (MBC) 为女性带来了独特的挑战,与早期疾病不同.
- 现有的研究往往忽视了MBC妇女的特定支持性护理需求.
- 了解这些需求对于制定有针对性的干预措施至关重要.
研究的目的:
- 描述MBC妇女的支持性护理需求.
- 为了确定与生命限制癌症预后生活的独特挑战.
- 为MBC患者提供心理社会干预措施的发展提供信息.
主要方法:
- 对22名被诊断患有MBC的妇女进行了四个两个小时的焦点小组.
- 在定性数据分析中使用了一般的诱导方法.
- 音频录音被逐字转录,并根据主题编码.
主要成果:
- 确定了16个支持性护理需求的代码,分为心理社会,身体/功能,卫生系统/信息和性/生育领域.
- 最常见的需求包括症状负担 (17.4%),缺乏社会支持 (14.9%) 和不确定性 (10.0%).
- 心理社会和身体/功能需求占所有确定的需求的三分之二以上.
结论:
- 患有MBC的妇女有着独特的支持性护理需求,目前的措施无法充分捕捉到这些需求.
- 解决心理社会问题和症状负担至关重要.
- 早期获得量身定制的干预措施可以提高MBC妇女的生活质量.
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