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与年轻人一起为年轻人共同设计一个网站,以便他们能够更好地管理自己的健康状况
Megan Wright1, Kathleen C Thomas1,2, Delesha Carpenter1,2
1Division of Pharmaceutical Outcomes and Policy, UNC Eshelman School of Pharmacy, Chapel Hill, NC, USA.
PEC innovation
|June 29, 2023
概括
一个共同设计的网站使患有慢性疾病的年轻人能够参与医疗保健讨论. 它提供了可访问的信息和资源,以促进青少年参与他们的医疗护理.
科学领域:
- 青少年健康 青少年健康
- 数字健康干预措施 数字健康干预措施
- 患者赋权是患者赋权的一种方式.
背景情况:
- 年轻人往往缺乏工具和信心来积极参与他们的医疗保健.
- 与医疗保健提供者进行有效沟通对于管理青少年慢性疾病至关重要.
- 与年轻人共同设计卫生资源,确保相关性和可用性.
研究的目的:
- 共同设计一个网站,使青少年有能力提出问题,并与医疗保健提供者进行有意义的对话.
- 为年轻人创建一个可访问的在线平台,让他们找到健康信息和资源.
- 加强年轻人参与管理自己的医疗保健.
主要方法:
- 青少年利益相关者 (年龄11-17岁) 患有慢性疾病被招募到青年咨询委员会.
- 在两年半的时间里,共举办了五次共同设计会议,为网站内容和改进提供了意见.
- 年轻人通过发展的各个阶段审查了网站.
主要成果:
- 青少年希望有一个简单的语言,有声誉的URL和各种健康主题 (例如ADHD,喘,心理健康,性传播疾病) 的内容.
- 要求的关键内容特征包括背景信息,有用资源,提问提示和视频.
- 年轻人强调需要鼓励他们积极参与护理的内容.
结论:
- 一个共同设计的网站,包括健康信息,提问提示和视频,可以增加青少年对医疗保健的参与度.
- 这项创新的干预措施旨在告知并鼓励年轻人成为管理他们健康状况的更积极参与者.
- 该网站是改善年轻患者健康素养和自我倡导的宝贵工具.
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