对于数据治理和在健康数据中心采用FAIR原则的Desiderata
Celia Alvarez-Romero1, Silvia Rodríguez-Mejias1, Carlos Luis Parra-Calderón1
1Computational Health Informatics Group, Institute of Biomedicine of Seville, IBiS / Virgen del Rocío University Hospital / CSIC / University of Seville, Seville, Spain.
Studies in health technology and informatics
|June 30, 2023
概括
这项研究分析了欧洲数据中心的FAIR原则合规性,这对于数据发现至关重要. 提出了建议,以加强欧洲卫生研究和创新云中的数据共享.
科学领域:
- 医疗信息学 医疗信息学
- 数据科学数据科学数据科学
- 信息管理 信息管理
背景情况:
- 欧洲数据中心对健康研究至关重要.
- 有效的数据管理对于实现数据发现和共享至关重要.
- 公平原则 (可查找,可访问,可互操作,可重复使用) 是数据管理的关键.
研究的目的:
- 分析欧洲数据中心的数据管理机制.
- 评估在这些枢纽中采用FAIR原则的情况.
- 为改善数据共享和融入欧洲卫生研究和创新云提供建议.
主要方法:
- 与代表性的欧洲数据中心进行了咨询调查.
- 对调查结果的分析,以评估公平和公平原则的采用.
- 开发最佳实践和建议.
主要成果:
- 在欧洲数据中心中确定了不同程度的FAIR原则的采用.
- 突出了需要改进的数据管理机制的领域.
- 产生了一系列可行的建议.
结论:
- 欧洲数据中心需要加强FAIR原则的采用,以便更好地发现数据.
- 建议提供了将枢纽整合到更广泛的数据共享生态系统中的路线图.
- 该研究支持欧洲卫生研究和创新云的发展.
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