对多发性骨髓瘤患者报告结果的评估工具
Ting Wang1, Qin Lu1, LeiWen Tang2
1Department of Haematology, Sir Run Run Shaw Hospital, Zhejiang University School of Medicine, Hangzhou City, Zhejiang Province, China.
概括
患者报告的结果 (PROs) 对于理解多发性骨髓瘤症状负担至关重要. 本综述强调了关键的PRO工具,并提出了全面患者评估的未来研究方向.
科学领域:
- 在瘤学瘤学.
- 患者报告的研究结果研究结果
- 健康结果的健康结果.
背景情况:
- 多发性骨髓瘤患者经历了显著的症状负担.
- 患者自我报告的症状比临床医生的评估更准确.
- 本综述审查了多发性骨髓瘤患者报告结果 (PRO) 评估工具.
研究的目的:
- 审查多发性骨髓瘤现有的PRO评估工具.
- 讨论当前PRO工具的应用和局限性.
- 确定多发性骨髓瘤的PRO中未来发展的领域.
主要方法:
- 在多发性骨髓瘤中对PRO评估工具的文献综述.
- 分析通常使用的PRO仪器 (例如,EORTC QLQ-C30,EORTC QLQ-MY20,FACT-MM,MDASI-MM).
- 在PRO开发中讨论测量理论 (经典与物品响应理论).
主要成果:
- EORTC QLQ-C30是广泛使用的用于多发性骨髓瘤患者生活质量的一般PRO工具.
- 经常使用特定的工具,如EORTC QLQ-MY20,FACT-MM和MDASI-MM.
- 目前的PRO主要关注生活质量和症状,对坚持和满意度的关注较少.
结论:
- 多发性骨髓瘤的PRO领域仍在发展.
- 需要增强PRO内容和更高质量的尺度.
- 将PRO与电子系统集成可以改善实时监测和患者的治疗结果.
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