了解早期发病的阿尔茨海默氏病的发展
Percy Griffin1, Liana Apostolova2, Bradford C Dickerson3
1Alzheimer's Association, Medical & Scientific Relations, Chicago, Illinois, USA.
概括
早期发病的阿尔茨海默氏症 (EOAD) 影响65岁以下的人,带来独特的挑战. 纵向早期阿尔茨海默病研究 (LEADS) 解决了这一差距,通过招募和跟踪患者来推进研究和支持.
科学领域:
- 神经学 神经学
- 老年学是一门学科.
- 公共卫生 公共卫生
背景情况:
- 阿尔茨海默病 (AD) 诊断在任何年龄都具有破坏性.
- 早期发病的阿尔茨海默病 (EOAD),在65岁之前出现症状,对那些处于最佳状态的人来说带来了独特的挑战.
- 由于不典型的发病年龄,EOAD患者经常被排除在研究之外.
研究的目的:
- 为弥补早期阿尔茨海默病的研究差距.
- 为患者,家属和护理人员提供有关 EOAD 研究,治疗和支持的信息.
- 为了在第一个以EOAD为重点的会议上促进讨论和信息共享.
主要方法:
- 纵向早期阿尔茨海默病研究 (LEADS) 于2018年建立.
- LEADS旨在在美国15多个地区招募和跟踪500名EOAD个人.
- 2021年9月,为EOAD患者,家属和护理人员举行了一次会议.
主要成果:
- 2021年9月的会议通知了超过217名注册人.
- 会议涵盖了EOAD生物学,新兴治疗方法,法律/财务规划和支持网络.
- LEADS正在积极招募和跟踪参与者,以收集关键数据.
结论:
- 对早期阿尔茨海默病的专门研究和支持非常需要.
- 该LEADS研究和相关会议对于促进对EOAD的理解和关怀至关重要.
- 对EOAD的持续关注对于解决这种患者群体的独特需求至关重要.
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