对于患有多发性硬化症的成年人来说,药物自我管理工具包:范围审查
Sara J T Guilcher1,2,3,4,5, Lauren Cadel1,2, Andrea He1
1Leslie Dan Faculty of Pharmacy, University of Toronto, Toronto, Ontario M5S3M2, Canada.
Exploratory research in clinical and social pharmacy
|July 3, 2023
概括
药物自我管理工具包对患有多发性硬化症 (MS) 的成年人来说是有希望的. 这些资源,通常是基于技术的,可以改善症状管理,坚持和生活质量,尽管需要更多的研究.
科学领域:
- 神经科学是一个神经科学.
- 药理学 药理学是指药理学的学科.
- 健康 行为 健康行为
背景情况:
- 多发性硬化症 (MS) 是一种自身免疫性疾病,需要复杂的药物治疗方案.
- 管理多种药物 (多种药物) 对患有多发性硬化症的人来说是一个挑战.
- 工具包可以促进行为改变,并支持慢性疾病的自我管理.
研究的目的:
- 识别和总结成年人多发性硬化症药物自我管理工具包.
- 分析工具包设计,交付,组件和评估措施.
- 了解MS药物管理现有资源的现状.
主要方法:
- 根据JBI的指导方针进行了范围审查.
- 包括专注于患有多发性硬化症的成年人 (18岁以上) 的研究.
- 综合了六篇关于四个不同的工具包的报告文章的发现.
主要成果:
- 确定了四个独特的工具包,主要是基于技术的 (移动/在线).
- 工具包在支持类型,频率和持续时间方面各不相同.
- 报告的结果包括改善症状管理,药物坚持,决策和生活质量.
结论:
- 对于成年人患MS的药物自我管理工具包的研究有限.
- 未来的研究应该采用混合方法设计来探索用户体验.
- 需要进一步开发和评估工具包,以实现最佳的设计和实施.
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