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一个患者驱动的贝塞特病注册表:患者的AIDA试点项目

Carla Gaggiano1, Alessandra Del Bianco2, Jurgen Sota1

  • 1Rheumatology Unit, Department of Medical Sciences, Surgery and Neurosciences, University of Siena and Azienda Ospedaliero-Universitaria Senese [European Reference Network (ERN) for Rare Immunodeficiency, Autoinflammatory, and Autoimmune Diseases (RITA) Center], Siena, Italy.

Frontiers in medicine
|July 3, 2023
PubMed
概括

对于贝赫塞特来说,一个新的患者登记册.

关键词:
贝赫塞特病是一种疾病.自发炎性疾病是自发炎性疾病.患者参与度 患者参与度患者驱动的注册表是患者驱动的注册表.患者报告的结果.罕见的疾病 罕见的疾病

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