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一个多步骤的方法来开发一个"讲故事"的干预措施,以改善患者的痛风知识和改善门诊随访
Lesley E Jackson1, Kenneth G Saag1, Germán Chiriboga2
1Division of Clinical Immunology and Rheumatology, University of Alabama at Birmingham, Birmingham, AL, USA.
Contemporary clinical trials communications
|July 3, 2023
概括
这项研究开发了一种视频讲故事干预措施,以改善痛风管理. 用患者的故事和专家的意见来创建有吸引力的内容,促进药物坚持和后续护理.
科学领域:
- 改变健康行为改变健康行为
- 慢性疾病管理 慢性疾病管理
- 患者教育 患者教育
背景情况:
- 讲故事的干预可以通过影响患者的知识,态度和行为来改善慢性疾病的管理.
- 痛风管理需要坚持药物治疗和随访护理,特别是在急性发作后.
- 开发有效的以患者为中心的干预措施对于改善痛风结果至关重要.
研究的目的:
- 描述一个视频讲故事干预的发展.
- 增加患者对痛风的知识.
- 为了促进药物坚持和随访护理,在痛风爆发后访问急诊室.
主要方法:
- 一个经过修改的德尔菲过程与痛风专家一起确定了干预的关键主题.
- 成年患有痛风的患者被招募为讲故事的人.
- 一个概念模型和患者经验指导了视频段的选择和组合,以传达基于证据的策略.
主要成果:
- 使用患者故事创建了一个视频干预,解决了痛风护理的可修改障碍.
- 四个不同的痛风患者在视频段中分享了他们的经历.
- 国际痛风专家为促进门诊护理和治疗坚持提供了关键信息.
结论:
- 基于健康信念模型,开发了一种使用讲故事的文化适当的叙事干预.
- 这种干预可以测试,以改善痛风的结果.
- 描述的方法可能适用于其他需要遵守门诊护理和药物治疗的慢性疾病.
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