在巴基斯坦生孩子患有血病的挑战:一个现象学研究
Inayat Ur Rehman1, Tahir Mehmood Khan2, Allah Bukhsh3
1Department of Pharmacy, Abdul Wali Khan University Mardan, Pakistan.
Journal of pediatric nursing
|July 6, 2023
概括
患有thalassemia儿童的父母面临着重大的心理社会和经济挑战. 了解这些经验对于改善巴基斯坦家庭的护理和支持计划至关重要.
科学领域:
- 血液学 血液学 血液学
- 儿科瘤学 儿科瘤学
- 心理社会研究 心理社会研究
背景情况:
- thalassemia是一种慢性溶血性疾病,对受影响的儿童及其家人产生深远影响.
- 父母的照顾涉及到相当大的情绪压力,财务负担,以及对孩子的福祉和未来的持续关注.
- 对照顾孩子的日常和终身承诺给父母带来了独特的挑战.
研究的目的:
- 探索父母在巴基斯坦抚养患有血病的孩子的多方面的经验.
- 了解这些父母遇到的家庭,财务,社会,治疗和心理问题.
- 确定影响巴基斯坦家长经验的特定文化背景.
主要方法:
- 使用了一种描述性的现象学方法.
- 有目的的抽样招募了21名患有thalassemia儿童的父母,直到数据和为止.
- 科拉伊兹的方法用于分析转录的采访,确定关键主题和子主题.
主要成果:
- 这项研究涉及21名巴基斯坦父母,主要是女性 (76.19%) 和家庭主妇 (61.90%).
- 很大一部分参与者没有受过教育 (28.57%),很少有人报告他们对自己的thalassemia遗传特征 (14.28%) 的认识.
- thalassemia显著加剧了家庭内的心理社会和经济困难.
结论:
- 患有thalassemia儿童的父母面临着各种各样的挑战,包括身体,社会情感,财务和家庭方面的挑战.
- 这些发现凸显了需要量身定制的支持和护理计划,以满足这些家庭的具体需求.
- 了解这些文化上不同的经验对于提高沙拉西米亚儿童及其家人的生活质量至关重要.
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